Thursday, July 16, 2009


So it looks like Josiah has aspirated again causing some irritation in his lungs.

He will be one hungry boy until his feeding tube is put in tomorrow morning. Stephen and I will get lessons on how to feed him using the pump at home. I am terrified. This will be an NJ tube that bypasses his stomach and throat completely so there will be no chance of reflux, vomiting, or aspirating. At this point we don't know how long he'll have it.

We'll have a swallow test one day soon, ojala. If he passes the swallow test they'll do a GI test for reflux.

I'm trying to just think about where we are right now, but I'm very upset about the feeding tube and the idea of not getting to feed him again. Hopefully, the teaching session tomorrow will help dispel fears.

Pray for rest and peace. None of us slept last night.


  1. Hey Merri and Stephen,
    I haven't met you guys but am praying for you and Josiah. He is so precious, and I can't imagine how hard this is on you. I hope you will let your friends come and spend the night so you can get some rest!

    "those who sow in tears will reap with shouts of joy..." psalm 126:5
    will be praying,
    Elizabeth Jones

  2. Praying that you, Josiah, and Stephen all sleep soundly and peacefully tonight. Praying that all goes well tomorrow and that your fears are dispelled and your concerns are calmed. Praying that God hears the quiet pleadings of your heart for your son and that He gives you peace. Give sweet Josiah a hug and kiss from me please. Love you dear Merri.
    Mama D

  3. Merri and Stephen,
    I am confident that you both will learn the process of feeding Josiah via the NJ tube. As a matter of fact, you will become experts. This process will become a part of your normal routine for a while. There will be scary moments in the beginning due to lack of experience, but you will learn. This tube will give Josiah the nurishment he so depirately needs in order to fight this disease. I will continue to pray for peace, knowledge and increased confidence in this process.
    With great love and admiration,
    Sandra Payne