Wednesday, February 23, 2011

Preliminary Results: Lots of Questions

The MRI itself went really well. Josiah was super funny right until he went under. He woke up well, asking for Allison and for grapes. Typical.

Sadly, the preliminary results are far from typical.

Since the beginning, Josiah's ventricles have been enlarged. These are the areas that store fluid in the brain. His were damaged due to the tumor, and has two shunts in place to help drain them, to keep them from expanding too far.

According to today's scans, these areas have collapsed. They have all but disappeared — they are even far smaller than in a normal brain. Additionally, the area where Dr. Boop operated 21 months ago can no longer be seen — indicating that this open area has also collapsed.

Since so much has changed, the doctors are currently unable to say for sure if the tumor is stable. They also don't know why this change has occurred, or what it means for Josiah in the near (and long-term) future. They are reviewing it with some specialists, and we should know more within 24 hours.

Thank you all for your past prayers and support, and I ask that you continue to intercede on our behalf as this new chapter unfolds. It's scary as hell, and a vivid reminder that as well as Josiah seems to be doing, his battle is far from over.

Pray that the doctors can discern what the cancer is doing, and set off this change. Pray that these changes would continue to have no effect on Josiah's wellbeing and development.

We'll keep you guys updated. Thank you all again. Your love is humbling.


  1. Will be continuing to keep Josiah in my thoughts and prayers! Thanks for this update.

  2. I'm so sad to read this. Praying for you and all our love to the Hacketts.

  3. Praying for you guys- that the battle between David and Goliath would be true for Josiah. Love to y'all from the Futrells

  4. Praying for all of you! - Gieselmann's

  5. Praying for all the dr's and ya'll that God would tell one of you wants going on with Josiah and a fast fix if there needs to be one.