'The Young' is our babies, and Stephen and I are 'the Restless' in this scenario.
I feel like we have been running like crazy people lately.
Allison is growing, starting to talk, and showing her once mild-mannered brother new worlds of things to get into around the apartment.
Josiah is doing okay. This morning took us to St Jude instead of Redeemer as we'd originally planned. A normal morning begins with Josiah staring at me from the side of our bed anywhere between 5:45AM and 6:30AM. For two days now we've had to go in and wake him up at 7:45 just because he has to have his Keppra at that time. He just isn't playing much. He hasn't had any shunt issues since October 2009, but this type of lethargy is characteristic of shunt problems.
St Jude docs looked him over and decided to just keep watching him. We'll be there Wednesday for therapy appointments anyway. It could just be a virus his body is fighting so he needs extra sleep.
His MRI is in three weeks and Stephen and I have hit 'scanxiety' a little early this time around. Our St Jude friends Arianna and Brody have relapsed. Carissa had been on treatment since before Josiah was diagnosed and she passed away this week. Belle is neutropenic (no immune system) and in the hospital. Avery's family is dealing with losing their unborn child.
The Lord always provides(!): Encouragement, sanity, Peace, wisdom, a clear mind... all the things I run short on when Pain and my sin seem greater than my Savior. Heart, believe what my brain is telling you!
Pray for these friends of ours.
Pray for us to know what to do for Josiah this week.
Pray for Stephen's back-- he has a bone spur.
Pray for my TMJ not to act up right now-- it gets worse with stress.
Thank you for being with us.
I love you guys, and you are always in my prayers. Kiss and hug the babies for me. I'll be praying extra hard for y'all this week.
ReplyDeletePlease let us know when the scan will be. Many prayers and much love.
ReplyDeleteWe think about you daily. Miss you guys, and we send our love/prayers to each of you. :)
ReplyDelete