While We Were Slacking

Sorry, guys! We're still here. Where have the past three weeks gone!?

St Jude appointments- MDO- other doctor appointments- community group- training for the 1/2 marathon- ALSAC events- enjoying the weather outside- catching up with friends we see too little- closing on our house...

Josiah is talking non-stop. A lot of his words are repetitions of what he just told you thirty seconds ago, but I suppose it still counts. He is extremely silly as usual. And, wow, I like to meet new people, but Josiah makes me look super shy and introverted. He does not meet a stranger. I was running down Highland (a busy street in Memphis) at rush hour with the kids and I kept thinking, "Man, everyone must be so happy to be getting home. Everyone seems to be smiling." Then I spied Josiah through the visor of the jogger waving like the king of England from his carriage.

What would an overdue post be without a little drama?

Josiah's had his MIC-KEY button (Gtube) for 14 months. It has never ever fallen out or been pulled out. Monday night we drive to Martin, TN (a couple hours away) to hang out at an Up Til Dawn event, and it comes out not once but TWICE!! The first time I had supplies in the car to refill the device and put it back in place. The second time the actual device needed to be replaced...the one piece of medical equipment I did not pack for our less than 24 hours stay away from home.

So we left the party early for a nearby ER and had the busted MIC-KEY taped in place til we could get a new one that fit from St Jude. Fun stuff. Thanks, Neil, Eric, and UTM people that helped us out! Josiah had the time of his life while we were there: Unlimited pizza and cookies, sorority girls with iPhones, and camera flashes everywhere. I wish I had videotaped the whole night (minus the gaping hole in his stomach)-- He was going nonstop.

He also got fitted for his CIMT cast. We've been practicing and if I mention 'practicing playing with Left Hand' he immediately starts asking, "No, take it off? Take it off?" Ergh. If he only knew.

Monday he won't get the option of getting it off after a couple hours. Monday is also his endocrine appointment. I have no idea if they will have something conclusive to say about his lethargy or if we're going more to rule something out. We'll let you know when we know.

We continue to enjoy life off treatment and pray for many more days (dare I ask for years?) like this.